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Annual Report 2009
Research Project:
Neural Tube Defects Registry (NTDR) RAC#: 99 1029E Investigators:
Essam Al Shail MD, Mohammad Al Abdulaaly MD, Zayed Al Zayed MD, Mohamad Shoukri Ph.D, Hoda Kattan MD, Wesam Kurdi MD, Nadia Sakati MD, Shazia Naz Subhani M.Sc , Ihsan Yassen MPH Project Description:
Neural Tube Defects refer to a group of lesions that occur at various positions along the spinal cord, which are ultimately due to a defect in the closure of the neural groove to form an intact neural tube. Anencephaly, spina bifida and encephalocele account for almost all NTD's.
The King Faisal Specialist Hospital and Research Centre established in March 2000 a registry for all patients with neural tube defects presenting to the hospital. The registry is a coordinated collaboration among the departments of Neurosciences, BESC, Pediatrics, Orthopedics, urology, and Obstetrics and Gynecology. The purpose of the registry is collection, management, and analysis of data belonging to patients diagnosed with NTD and presenting to KFSH&RC.
Active data acquisition and registration is on-going from KFSH&RC and the collaborating hospitals; Disable Children Hospital, Maternity & Children Hospital, Dammam and Riyadh Medical Complex, Riyadh . Progress:
- Data audited prior to annual report data tabulation.
- Registry staff participated in 2 Spina Bifida Awareness Days events. One in National Guard and the other in King Faisal Specialist hospital & Research Centre .
- On-going collaboration with regional hospitals
- Statistics for all year as of December 31, 2009 is:
Collaborating Hospitals
New cases 605
Follow up 278
- Statistics for year 2009 is:
Collaborating Hospitals
New cases 44
Follow up 44
Future Directions:
o On-going collaborations with hospitals which are in agreement with the registry expansion plans.
o New collaborations . Publications:
Seventh Annual Report with Registrations from October 01, 2000 till December 31, 2008. |
